VitiligoWeb.com
I haven't been posting much lately on my Vitiligo blog, but I have been doing some reading and checking out the latest news on Vitiligo.
My recent post on Sunday, Sept 2 has a couple of videos worth watching. The first is an update on drug trials for Scenesse. It's an interview with the CEO from Clinuvel, discussing early results from the trials started in 2011. There are some promising photos of patients with high repigmentation, and he says if things go well the drug could be available in 2 to 3 years. I also posted a second video which has a good presentation of what is happening under the skin with vitiligo, with some good visual video. If Scenesse is eventually approved for use, Clinuvel company stock could also be a good buy!
Another recent news item caught my eye. A person did a recent post on their experience with vitiligo, and how a supplement called Tyrosine gave them repigmentation.
http://www.experienceproject.com/stories/Have-Vitiligo/2527288
I can't verify that this story is true, it's just a post on the internet, but I did some reading on Tyrosine and it does play a role in pigmentation. If your body doesn't produce enough Tyrosine, maybe that plays a role in vitiligo. Also, I checked the Merry Clinic website which has a vitamin mix for vitiligo, and sure enough Tyrosine is one of the supplements in the mix. This is the first I've heard of this connection. I decided to try it out and bought some Tyrosine capsules at my local vitamin store for about $25. If I get any good results I'll post them here. If you decide to do this yourself, read up on Tyrosine first like I did, to see if it's safe for you. It seems to be relatively safe unless you have thyroid issues, there is a good write up on it on Wikipedia.
I've also read before that ginkgo biloba can help with vitiligo, so I also bought a bottle of that to try, but I have higher hopes for the Tyrosine.
There was also some news out lately that says people with vitiligo have higher risk of thyroid disease, but to my knowledge I've never had thyroid issues. You can read it here.
http://www.northdrugstore.com/news/2012/08/vitiligo-patients-at-high-risk-of-developing-thyroid-disease/
One other thing I've noticed, is that I now have vitiligo on most of my hands above my wrist, except there is a patch of my normal skin color under my gold wedding ring. All my other fingers have white color in that spot, except where my wedding ring is. Is it just a coincidence, or could the gold have some sort of effect? I've heard that copper deficiency could be associated with vitiligo, but maybe also gold? If anyone else has seen this effect please post below!
I'd also appreciate any other comments on your experience with Vitiligo.
Tuesday, September 4, 2012
Sunday, September 2, 2012
Vitiligo Trials of Scenesse - Youtube Video
VitiligoWeb.com
There is a new drug called Scenesse that started trials in 2011 for vitiligo. I found this video on Youtube where they interview a doctor from the drug company, and there are some dramatic photos of early results on vitiligo patients. Looks very promising!
Here is an older video with some good information on what they think is happening inside the skin with Vitiligo.
There is a new drug called Scenesse that started trials in 2011 for vitiligo. I found this video on Youtube where they interview a doctor from the drug company, and there are some dramatic photos of early results on vitiligo patients. Looks very promising!
Here is an older video with some good information on what they think is happening inside the skin with Vitiligo.
Subscribe to:
Comments (Atom)